English
What to do when a loved one
has chronic kidney disease ?
Home » Patients » Need for support » WHAT TO DO WHEN A LOVED ONE HAS CHRONIC KIDNEY DISEASE ?
Chronic kidney disease (CKD) affects not only the patient’s life but also that of their loved ones. As a caregiver, it is essential to be aware of the available resources to support your loved one effectively while maintaining your own well-being.
Providing Emotional and Moral Support
- Active listening : Offer a compassionate and attentive ear, allowing your loved one to express their emotions and concerns.
- Positive attitude : Maintain a calm and encouraging environment to help them cope with new medical routines.
- Attending medical appointments : Your presence at consultations can strengthen communication with the healthcare team and ensure a better understanding of treatments.
Adapting Daily Life
- Home adjustments : Depending on the type of dialysis chosen, a dedicated space may need to be set up at home.
- Diet modifications : Dialysis patients often need to monitor their intake of potassium, phosphate, salt, and water. Reducing foods rich in these elements helps prevent complications.
- Encouraging physical activity : According to medical recommendations, adapted physical activity can improve quality of life.
- Supporting independence : Assist your loved one with daily tasks while encouraging autonomy.
Accessing Support Resources
- Support organizations : Associations like "Association Française des Aidants" offer resources, training, and support groups for caregivers.
- Financial and social assistance :
- Daily Caregiver Allowance (AJPA): Provides financial support for caregivers who need to reduce or pause their professional activity to care for a loved one with a disability or loss of independence.
- Caregiver Leave: Employees are entitled to specific leave to support a loved one with a disability or loss of autonomy.
- Personalized Autonomy Allowance (APA): A financial aid granted to elderly individuals experiencing loss of independence, which can also help support caregivers.
- Respite solutions : Various options exist to give caregivers time for themselves, such as day or night care, temporary residential stays, or in-home support.
Taking Care of Yourself as a Caregiver
- Protecting your health : Prioritizing your physical and mental well-being is essential. Take breaks and seek external support to prevent burnout.
- Finding support : Joining discussion groups like "Cafés des Aidants" provides a space to connect with other caregivers and share experiences.
Supporting a loved one with CKD is a meaningful commitment. With proper organization, a strong support network, and access to information, you can help improve their daily life while maintaining your own quality of life.
